by Askari Shujaa

Long COVID, the extended, post-pandemic form of the pandemic COVID-19 virus, presents itself differently in every individual it touches. For some, the changes are subtle and gradual, but for others, the effects may be severe, persistent and life-altering. It remains without a universal definition, a reliable diagnostic test or confirmed treatment plan. What unites many living with this condition is not just the shared symptoms, but the ongoing process of reclaiming life, one mindful breath at a time.

Recovery is Not the End

Many people that contracted COVID-19 expected a short illness followed by a full recovery. However, for a significant number, the virus had other plans. After the initial infection was resolved, a range of symptoms lingered such as fatigue, muscle and joint pain, shortness of breath, insomnia, brain fog, dizziness and digestive issues, among others. Weeks turned into months, and for some, years. While certain symptoms faded over time, others persisted or evolved, reshaping daily routines and personal identities. Living with Long COVID became less about recovery and more about adaptation—learning how to navigate a new, uncertain normal.

Life After the Virus

This often means managing limited energy, chronic pain and cognitive changes. Everyday tasks once taken for granted now require careful planning, pacing and rest. Many report that they must budget their energy throughout the day to avoid flareups or crashes. The experience is different for everyone, but the need for awareness, patience and self-compassion is nearly universal. While some are no longer able to work or engage in prior activities, others find creative ways to stay connected to their passions, even if on a smaller scale.

The Emotional Toll

Beyond the physical symptoms, Long COVID can take a serious emotional and mental toll. Feelings of isolation, confusion and grief are common, especially when symptoms are misunderstood, minimized or dismissed by others, including medical professionals. Early in the pandemic, the term “long-hauler” wasn’t even part of the conversation. Many felt alone in navigating a condition with no road map. For some, the turning point comes with a decision to shift perspective and move from frustration to self-advocacy—from despair to hope. Choosing love, compassion and acceptance as guiding principles helps them begin to rebuild from a place of strength, rather than fear.

A Holistic Approach to Healing

With limited solutions coming from conventional medicine, many individuals turn to holistic practices for support. Modalities such as qigong, tai chi, yoga, breathwork, meditation, acupuncture and herbal remedies have become powerful tools for managing inflammation, pain, anxiety and fatigue. These practices often serve the dual purpose of both providing both physical relief and spiritual grounding. Rather than striving for a return to their old self, those on the healing journey often focus on honoring the body’s current capacity and finding joy in the present moment. Healing becomes less about a destination and more about a relationship with the self, the body and life as it is.

Navigating a New System

Experiences with healthcare providers vary widely. While some practitioners offer empathy and support, others struggle to acknowledge or understand the complexity of Long COVID. Many people are left to advocate for themselves by becoming experts in their own care through trial, research and community support. This lack of clarity can be disheartening, but it has also prompted a broader shift in how individuals define healing. It is no longer only about eliminating symptoms, but also reclaiming agency, finding purpose and making peace with what is.

Redefining Healing

Healing from Long COVID is rarely linear. It may involve periods of improvement followed by setbacks, and often requires adjusting expectations. But healing is also a mindset. It is about showing up for life with what is available in the moment and finding value, beauty and meaning in new ways. While Long COVID may limit the body, it does not have to limit the spirit. Many that live with this condition find new depths of resilience, creativity and connection, both with themselves and with others walking similar paths.

Starting the Journey

Those new to this experience should know that it is okay to grieve and even feel overwhelmed because these emotions are part of the process. But this can also be a beginning—a chance to rebuild a life that is softer, slower and more intentional. Motivated individuals can advocate for their personal health, seek out community and explore tools that resonate within such as breathwork, therapy, journaling, spiritual practice or integrative care, and above all, embrace grace, because healing looks different for everyone.

Askari Shujaa is an advocate for Long Covid awareness.